This summer's quarterly check was bitter sweet...our primary neurologist was leaving Children's Hospital as she finished her residency and moving to Wisconsin. Charles was her last appointment of the day on the Dr's last day of work, but we didn't feel rushed. The Dr. explained Charle's history in great detail (much of it from memory) to her boss, one of the heads of the Neuro deparment of Children's Hospital. Charles will now go to a new Dr. going forward - Dr. Paul Levisohn (very senior Doc). At this appoinment it was also somewhat dissapointing because the finally were using the term "epilepsy". In past visits they avoided (I'm not sure intentionally or unintentionally) using that word, but in reality that's what it is - Charles has a form of epilepsy. They are still unsure what type, but it's looking more and more like he will not out grow it in his early childhood years as originally thought - Benign Infantile Myoclonus is probably no longer the issue.
Because he had a set back in May, once again, they upped his meds. Also, they upped the quantity because he had gained more weight. He is now at 4ml twice daily of the Keppra.
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