Last night I was taking Annelise to hula dance class when Ken called to say Charles had a slight fever and was having seizures. It was a minor cold, but because he's so sensitive to being sick, he got a small, short lived bout of tremor-like seizures. Ken gave him some fever medicine and it came right down and didn't return. He also gave him his clonazapam, which he only gets if he's actively having them. They stopped the seizures and they also didn't return this week. I'm so happy it was short-lived. However, two sad things. First, now he can talk to he was saying to Daddy, "I'm scared Daddy, I want Mommy"...he kept repeating he was scared. Which is how I've always described his seizures since he was 5 months old, but now he can articulate that on his own. Second sad thing is that every time he has a seizure the "clock starts over" - meaning he has to be on daily medication for 2 years without having a seizure...so the EARLIEST he would be done with seizures is age 4 1/2 and that's assuming he NEVER has one again, which at this point, I would consider very unlikely.
The dr. did mention at this summer's quarterly visit, that some kids outgrow it by the time they are in their early 20s.
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