Sunday, October 11, 2015

Sunday Worst, Not Best

As we do every Sunday, we went to Church but during Sacrament Meeting, Charles' seizures were getting worse, so we went home early.  He must have had 50 seizures in 1 hour, poor baby.  So we left the other kids at Church with Grandma Dianne and Aunt Sheila and we took him to Children's Hospital in hopes maybe he could get an IV dose of anti-seizure meds.  It was the South Campus, but they couldn't help him.  So we made a follow up appointment for that week with his doctor, Dr. Miller who increased his meds again.  However, I want to point out, at that appointment, he noted the "pain" that Charles was having as not normal.  I thought it was odd, because Charles has ALWAYS had pain with his seizures and I assumed ALL kids (or at least most) experienced the same thing.  It would be months before I found out that was extremely rare.   And, no wonder he has such a high pain tolerance.   


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