My Dad (Charles' Grandpa) turned 70 in December 2011. His brother and sister and their spouses came to
town for the party - Uncle Tom & Aunt Vylee and Aunt Janet & Uncle Eric. Being Jachs, we had to add a little drama to the already busy weekend. But let me back up first. As Charles parents, we have spent his whole life making sure his naptime is the PRIORITY...as we know his rest is so important to help avoid seizures (which we've decided are brought on by a few different things - overstimulation, under-rested, under-medicated, ear infections, etc.). So, for the first time in probably 14 months, we let Charles "stay up late" and "party" with the family for my Dad's 70th. Well, we thought we were getting punished for it when we ended up in the Children's Hospital Emergency Department, yet again (I think that's 4 times now). However, after visiting with the docs, we realized that since it had been his last appointment with Neurologists, Charles had gained 10 lbs, but yet his Rx had never been increased - so he was being under-medicated. At that point, they raised his Keppra amount again - almost doubling it - to 2.5ml (originally 1.3).
town for the party - Uncle Tom & Aunt Vylee and Aunt Janet & Uncle Eric. Being Jachs, we had to add a little drama to the already busy weekend. But let me back up first. As Charles parents, we have spent his whole life making sure his naptime is the PRIORITY...as we know his rest is so important to help avoid seizures (which we've decided are brought on by a few different things - overstimulation, under-rested, under-medicated, ear infections, etc.). So, for the first time in probably 14 months, we let Charles "stay up late" and "party" with the family for my Dad's 70th. Well, we thought we were getting punished for it when we ended up in the Children's Hospital Emergency Department, yet again (I think that's 4 times now). However, after visiting with the docs, we realized that since it had been his last appointment with Neurologists, Charles had gained 10 lbs, but yet his Rx had never been increased - so he was being under-medicated. At that point, they raised his Keppra amount again - almost doubling it - to 2.5ml (originally 1.3).
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