Non-Emergent EEG (3rd one) in Parker

In December Charles had a non-emergent EEG repeated to see if anything had changed from his December 2011 seizures. Grandma Dianne came to the rescue to help take care of Charles during this procedure - she brought her trusty iPad and showed him videos, etc. Once again, thanks Mom!! And, Thanks Aunt Cami for watching Liesl that day. It takes a village to raise Charles. :-)

Charles got to play with some cool toys in the waiting room first. The smile is when he was SO excited that the tech was taking the wires off. I have to say, at first I was leary that there was only 1 tech assigned to do the EEG on Charles, and that since it was outpatient and not done at Children's, I wasn't sure it would go very well, but this tech did a great job. And, so did I keeping him happy for 1 hour. Thank heavens for iPads, books, stuffed animals, and MANY different snacks.

Grandpa's 70th Birthday Weekend...and of course a seizure weekend too

My Dad (Charles' Grandpa) turned 70 in December 2011. His brother and sister and their spouses came to town for the party - Uncle Tom & Aunt Vylee and Aunt Janet & Uncle Eric. Being Jachs, we had to add a little drama to the already busy weekend. But let me back up first. As Charles parents, we have spent his whole life making sure his naptime is the PRIORITY...as we know his rest is so important to help avoid seizures (which we've decided are brought on by a few different things - overstimulation, under-rested, under-medicated, ear infections, etc.). So, for the first time in probably 14 months, we let Charles "stay up late" and "party" with the family for my Dad's 70th. Well, we thought we were getting punished for it when we ended up in the Children's Hospital Emergency Department, yet again (I think that's 4 times now). However, after visiting with the docs, we realized that since it had been his last appointment with Neurologists, Charles had gained 10 lbs, but yet his Rx had never been increased - so he was being under-medicated. At that point, they raised his Keppra amount again - almost doubling it - to 2.5ml (originally 1.3).