Charles had some seizures in either April or May of 2011, after not having had any since New Years Day. In May 2011, Annie (Amelia's best friend) was in town for a "girls weekend", and I had a quarterly outpatient neurology clinic visit at that time. Annie got to come with me and we asked lots of questions. As I recall, they increased his meds at that point from 1.5ml to 1.8ml per dosage. Annie, Charles, and I got the famous "Children's Hospital Gelatto" as a treat afterwards. I should have Annie write this post because she will remember it so well, but she and I discussed the amazing atmosphere at Children's Hospital - it's an overwhelming feeling - it's intense, it's impressive, it's huge, it's emotional, it's slow, it's busy, it's hopefully healing. When you go with your child, you are quickly made aware that SOOOO many children are SOOOO much worse off than your child. It emits emotions that are sometimes too overwhelming. One anecdote, we always "valet" the car when we go to the hospital and one time, they valet guy said "how's Charles"? I was flabbergasted. Although I don't have a picture of that day, this photo was taken of Charles the week before - at the park. I've decided I really should include some photos of Charles being his fun, happy, young self and not just a "patient". Charles likes his PJs whether he's at the hospital OR the park. Yeah, 4th child, PJs BECOME their outfit. I just LOVE this baby.
